Our beautiful Emma Rose Pearl was born on the 17th of August 2021 at 6.15pm weighing a tiny 5lb 11oz. 

During pregnancy she was diagnosed with congenital titinopathy and arthrogryposis.

Shortly after she was also diagnosed with congenital myopathy.

She lived for 6 weeks and 5 days, meeting her siblings only once just a couple of hours before she passed away peacefully in her daddies arms with mummy by her side. She was surrounded by love in her final moments.

Even though she couldn't come home and spent her short life in hospital she touched so many people.

We wish everyone could have met her but due to covid restrictions that wasn't a option.

She was the most beautiful baby she will never be forgotten. Always loved and cherished.

We love you baby girl, you will be looked after up there until we can meet you again.

Love always

Mummy and Daddy

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